Tag Archives: PPI

Why does PPI benefit research?

13 Jul

by Sally Giles, Research Fellow in Core PPI Research theme and Philip Hammond, PPI Coordinator

PPI blog post_July2017

Why do PPI?

“All organisations should seek out the patient and carer voice as an essential asset in monitoring the safety + quality of care” Berwick Review, July 2013

We believe that including the patient voice in our research makes it more meaningful and relevant to the real world.  We have experienced examples of when patient feedback has influenced our research.  As part of the Greater Manchester PSTRC we wanted to look at how PPI impacted on our research in an academic context.  To do this we had a look at the academic literature, firstly to find out why people involve members of the public in their research. We discovered that people who use health services can help to ensure that issues that are identified and prioritised are important to them and therefore to health care, public health and social care as a whole.  Public involvement can help to ensure that money and resources are not wasted on research that has little or no relevance and that being involved in research can help empower people living with a medical condition.  We used this as a basis to develop our own PPI structure within the Greater Manchester PSTRC.

The Research User Group (RUG)

The RUG started off as a group of 12 members of the public, who met every 6 weeks.  Each of the research themes within the Greater Manchester PSTRC were allocated 2 or 3 members to their theme.  A RUG evaluation highlighted that some researchers were heavily reliant on their aligned members for all projects within their theme.  It also highlighted that it was challenging to see how the RUG was having an impact on research, as this impact was mainly happening at project level.   Based on feedback of RUG members and in an attempt to widen involvement by bringing in more associate members of the public, a restructure to the RUG took place.  It was agreed that there should be a split between governance and project level PPI.  This new structure was implemented two years into the centre.

The restructure enabled us to focus more on project level PPI, and we have a number of examples of how PPI has benefitted the research on specific projects.  Some examples follow below:

1.   Multimorbidity Research Advisory Group (MRAG) was set up to involve patients and carers in the development of resources and new research projects for the Multimorbidity theme.  It consisted of 18 group members who provided feedback on research, shared ideas, helped to set research priorities and supported two applications for further funding.

2.   In the Interface & Informatics theme patients and public contributors have been involved in enhancing research by taking part in a number of  sessions aimed at investigating the relevance of an established patient portal for patients with long term conditions (PatientView) and identifying strategies for improvement. This group also commented on draft study protocols, designed and co-facilitated a larger workshop and helped to identify social media and patient associations as an additional recruitment strategy (resulting in 25% more recruits).

3.      In the Medication Safety theme members of the public have been involved in the recruitment of participants for focus groups, co-facilitation of focus groups and coding of transcripts using an existing framework.

4.      For the Core theme members of the public have helped develop the Primary Care Patient Measure of Safety (PC_PMOS) study.  They helped to develop the items to be included in the PC_PMOS and recruited patients in GP practices to complete the PC_PMOS, Patients were able to relate more easily to the PPI members than the research team, which helped to increase participation in the study

5.      In the GP theme there has been public and stakeholder involvement in the patient safety guide project via 3 different involvement groups with key stakeholders.

Thoughts for the future

Our advice to anyone wanting to develop a PPI structure within a large (or small) research centre is to plan carefully by starting with a clear strategy, but be willing to accept that this will constantly change as the needs of those involved evolve.  Involvement needs to continue to be an iterative process, people have different (and changing) needs and get involved for different reasons, and equally research studies have different aims and priorities which need to be addressed when planning involvement.  We see involvement as being broader than patients or members of the public.  Often the end users of our research have been health professionals and as such, our definitions of involvement and engagement have evolved to include all relevant stakeholders.

NIHR Greater Manchester PSTRC Meet the Team – Sally Giles

12 May

The seventh in our NIHR Greater Manchester PSTRC ‘Meet the Team’ series introduces Sally Giles, Research Fellow in our Core PPI research theme

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Greater Manchester PSTRC Dissemination Event: A Lay Delegate’s Perspective

28 Mar

by Moira Lyons, member of the NIHR Greater Manchester PSTRC Research User Group (RUG)

MoiraLyons_SaferPrimaryCare_image

As a Core Member of the Greater Manchester Primary Care Patient Safety Translational Research Centre (GM PSTRC)’s Research User Group (RUG), I was delighted to be invited to attend the Centre’s recent flagship dissemination event, “Safer Primary Care: A shared responsibility for system-wide learning”, which was held over two days at the Manchester Conference Centre. For me, the inclusion of members of the public in the delegate list (and not purely as spectators – several RUG members took part in the delivery of workshops, alongside researchers) underlined the genuine commitment to patient and public involvement apparent in every aspect of the Centre’s work.

It was very exciting to see the evidence of how much had been achieved over the last five years and to hear something of the plans for the new PSTRC! The atmosphere was one of expectation and enthusiasm and an inextinguishable optimism for the future. One theme resonated throughout – communication and sharing data. The more we can make use of the data available to us and share the information we have with all parties involved, the better it will be for everybody and the easier it will be to progress all aspects of patient safety. And what better exemplification of that than this event!

The speakers were relevant, informative and entertaining, the organisation was faultlessly streamlined – even the catering was of a high standard, plentiful and varied. A balance was struck between opportunities to listen and learn and opportunities to discuss and ask questions. The poster session was a lively event, as presenters eagerly approached delegates who showed an interest in their work. The diversity of research within a common theme was impressive, as was the dynamic exchange of information that drew everybody in. For example, I had a very interesting discussion with two GPs about the differences in diagnosing practice between the UK and other parts of the European community; a Dutch GP will routinely consider the option of whether or not there is “a need to treat” – a relevant concept in view of the current concern about overprescribing. It was also good to hear a GP decry the use of the “one appointment one issue” policy that has been adopted in some general practices.

The Event Dinner at the Principal Hotel, on the evening of the first day, was well attended. The after-dinner speech, delivered by Professor Richard Roberts, was a highlight. Even though, as he pointed out, he was all that stood between diners and dessert, his audience was captivated by a superb combination of thought provoking comment and insightful reflection, informed by personal experience, as he considered the future of primary care.

The two days passed all too quickly.

Get Involved!

18 Dec

We are currently looking for people to get involved in our research by becoming a Core or Associate member of our Research User Group (RUG).

 

As a Greater Manchester-wide centre, we are keen to reach as many people as possible with our work and involve both patients and members of the public from the area. 

As well as our patient populations, we are particularly keen to reach people working in primary care (doctors, nurses, pharmacists, practice staff etc) and those who work in or have a specialist interest/knowledge in patient safety or research.

Our Research User Group (RUG) was established to work in partnership with the research teams, advising or assisting with research developments, and consists of:

 

Associate Members of the RUG

As well as receiving the regular newsletters, our Associate Members meet annually.  They will be actively involved in one (or more) of the research projects.  We are currently accepting applications for Associate membership, please see our website for further details.

Core Members of the RUG

The core group consists of ten members who meet every six weeks.  The elected Chair sits on the Executive Management Board.  Members are aligned to one of the research themes to ensure involvement sits at the heart of each research project and to help develop further ways to involve members of the public.

 

We are currently looking for a number of new members to join the core RUG.  You will need to use NHS primary care services (GP surgeries or pharmacies) in Greater Manchester, have a keen interest in health research and be able to commit to regular meetings (fees and expenses will be reimbursed).

 

For more information and to download as application pack for either Associate or Core membership, please visit our website.

Research Rookie finds her feet with medication safety

26 Sep

by Faith Mann, member of the Greater Manchester PSTRC Research User Group, affiliated to Medication Safety theme

Faith Mann blog photo_Sept 14

“Why on earth am I doing this? Whatever possessed me to apply for this?” Those were some of the thoughts running through my mind as I prepared to attend my first meeting of the RUG back in May this year. After almost three years of blissful retirement with no deadlines to meet, no meetings to attend and no blogs to write, I began to question why I had signed up to take part in anything as structured and potentially demanding as the RUG appeared to be. Yes, I was interested in and committed to the concept of patient safety, but was this going to be a good use of my time, and could I really make a positive contribution to the work of the RUG?

Those doubts began to evaporate in the course of the meeting. The established RUG members warmly welcomed the three new members, of whom I was one, and the Chair of the meeting took the trouble to explain the background and import of some agenda items that would otherwise have been bewildering to a newcomer. Most importantly, the meeting ran to time! At the end of it I felt that I had gained a good understanding of the RUG and how it relates to the research themes and I was beginning to see how I could make a contribution to its work.

I was pleased to be aligned with the Medication Safety theme because some members of my family have suffered from mistakes in prescribing so I’m powerfully aware of the need for health professionals to maintain high standards in the prescribing and dispensing of medicines. Likewise, I believe that the patient has a responsibility to check prescriptions and to take medication according to the doctor’s or pharmacist’s instructions, so there is work to do from both the health professional’s and the patient’s perspectives.

There’s a lot happening in the Medication Safety research theme and I’m still in the process of getting to grips with it all but, already, I’ve been able to assist with identifying some patient focus groups to be interviewed for the research about their experiences with medication and I’m involved in the planning for an event that will highlight the issue of medication safety as part of the Manchester Science Festival. I feel that I have been welcomed by the research theme lead and the research assistants and that my perspective as a member of the public and occasional patient is valued by them.

It seems to me that PPI is still a fairly new concept to the NHS and is something that is put into practice to different degrees across the organisation as a whole. That’s one of the reasons why I applied to join the RUG in the first place – so that I could take part in the debate and help to develop a better understanding of the benefits of PPI and the opportunity that it presents for a true partnership approach between patients and health professionals which can only lead to better understanding between those groups and better outcomes for service users. I’m looking forward to the next couple of years to see how the RUG, of which I’m now a part, will influence health services across Greater Manchester, and possibly beyond.

Get involved!

31 Jan

by Philip Hammond, PPI Coordinator for the GM PSTRC

Image

We are currently looking for people to get involved in our research by becoming a Core or Associate member of our Research User Group (RUG).

As a Greater Manchester wide centre we are keen to reach as many people as possible with our work and involve both patients and members of the public from the area.

As well as our patient populations, we are particularly keen to reach people working in primary care (doctors, nurses, pharmacists, practice staff etc) and those who work in or have a specialist interest/knowledge in patient safety or research.

Our Research User Group (RUG) was established to work in partnership with the research teams, advising or assisting with research developments, and consists of:

Friends of the GM PSTRC

Who receive regular newsletters and information about the work of the centre and are offered opportunities for further involvement or participation.  Becoming our friend is as easy as letting us have your email address on our online form.

Associate Members of the RUG

As well as receiving the regular newsletters, our Associate Members meet annually.  They will be actively involved in one (or more) of the research projects.  We are currently accepting applications for Associate Membership, please see our website for further details.

Core Members of the RUG

A core group of 12 appointed members who meet six-weekly.  The elected Chair sits on the Executive Management Board (one of the governance bodies within the GM PSTRC).  Members are aligned to one of the research themes to help develop further ways to involve members of the public and to recruit Associate Members.

We are currently looking for a new member to join the Core RUG.  You will need to use NHS primary care services (GP surgeries or pharmacies) in Greater Manchester, have a keen interest in health research and be able to commit to regular meetings (fees and expenses will be reimbursed).

For more information and to download an application pack for either Associate or Core membership, please visit our website.