Archive | February, 2016

Welcome to the Revolution

26 Feb

by Richard Morley, James Lind Alliance Adviser

JLA_PSP_10Priorities_IMG_0066_cropped

Final 10 priorities from a previous Priority Setting Partnership

As the James Lind Alliance Priority Setting Partnership (PSP) in Patient Safety in Primary Care gets underway, I am delighted to be able to start a series of blogs about our work. It’s my privilege to be the partnership’s JLA Adviser and Chair of the Steering Group, and to help navigate a committed group of patients and health professionals through the JLA method and to change the research agenda for the benefit of primary care patient safety.

My first encounter with the JLA was in 2011, working with the JLA Pressure Ulcer PSP. I was interested to see how social media might help us to engage with our stakeholders and set up a Twitter account. In just a few short days we received our first Tweet. It said “Welcome to the revolution”. And while we may not be engaged in a mutiny, our work will, in its own way, be contributing to a sea-change in the way that research priorities are identified.

Why James Lind?

In 1747, Royal Navy Surgeon James Lind aboard the Salisbury, conducted the first recorded trial in to the treatment of scurvy.  His trial involved 12 sailors, chosen to be as similar as possible, and given the same diet, and who were allocated to six groups and given a range of common remedies. Lemons and limes proved effective and the eventually lime juice formed part of the standard diet of Royal Navy Sailors (http://www.jameslindlibrary.org/articles/who-was-james-lind-and-what-exactly-did-he-achieve/). This saved thousands of lives and so Lind is a revolutionary hero of evidence based medicine.

Why the James Lind Alliance?

It was for this reason that Sir Iain Chalmers (also founder of Cochrane http://www.cochrane.org/) chose James Lind to be the figure-head of the James Lind Alliance when he, along with Dr John Scadding (then Dean of the Royal Society of Medicine) and Sir Nick Partridge (former Chair of INVOLVE), formed the JLA in 2014. He believed that research on the effects of treatments often overlooks the shared interests of patients, carers and clinicians. As a result, questions that they all consider important may not be addressed and many areas of potentially important research can be neglected. More recently Chalmers and Glasziou have identified how answering questions that are not the priority of patients and health professionals contributes to massive waste in research (http://researchwaste.net). The JLA helps address this imbalance.

Research priority setting in action

The JLA helps bring together partnerships of patients, carers and health professionals to identify and prioritise unanswered questions about health research. The ultimate goal is a list of the most important ten shared priorities that the partnership will subsequently promote for future research.

50 partnerships have either completed or are currently underway from Acne to Womb Cancer. The Patient Safety in Primary Care partnership will therefore be following an established route over the next year. More information about the James Lind Alliance and the JLA method can be found here: http://www.jla.nihr.ac.uk/.

Get involved!

Finally, if you are reading this, then you are probably a health professional, carer or patient with an interest in patient safety in primary care. This is your chance to be a part of that revolution and change the nature of research. Do follow @JLA_PtSafetyPSP on Twitter and visit the partnership’s website at http://www.population-health.manchester.ac.uk/PatientSafetyPSP where you will find out more information and, very soon, tell us what you would like to see researched.

Recruiting GP practices to validate the Primary Care Patient Measure of Safety (PC_PMOS)

3 Feb

by Sally Giles, Research Fellow in Core theme

Receptionist and Patient GP Surgery_cropped_small

Study aims

The NIHR Greater Manchester PSTRC project is looking to validate a tool which captures patients’ views of safety in primary care (PC_PMOS). The aim of this tool is to provide feedback to practices about the strengths and weaknesses of the safety of the care they provide from the patients’ point of view. It is intended to be part of practice’s continual quality improvement processes. Details of its development can be found here: http://qualitysafety.bmj.com/content/early/2015/07/03/bmjqs-2015-004268.full

 

What we are asking practices to do?

We are asking local general practices to help us recruit patients to complete this tool which is a survey. Patients will be recruited by the reception/administration staff at general practices on the researcher’s behalf. Every adult patient (over the age of 18) presenting for their appointment at the practice over a designated 4 week period will be invited to participate in the study until 50 patients have completed it. They will be asked by the reception/administration staff at the practice to complete the PC_PMOS survey either before or after their appointment. Each practice will be provided with a secure questionnaire return box for patients to put their questionnaires in. Participants will also be invited by the reception/administration staff at the practice to complete the questionnaire again within one week of undertaking the first questionnaire for test-retest reliability purposes. Those who are willing to complete the questionnaire again will be given the opportunity to opt in and are asked to provide their email address and phone number so a link to the questionnaire can be emailed to them. The first 10% of patients who respond will be emailed a link to the questionnaire to complete.  The anonymised feedback provided by patients on this survey will be made available to practices after the study has been completed. In addition, each staff member at the practice will be required to complete a safety culture survey which should take no more than 20 minutes to complete. Demographic information about the practice and patient profile would also need to be provided to the research team.

 

What are the benefits of being involved in this study?

Completing the questionnaire will help the researchers to develop a reliable and valid tool that patients can use to provide feedback about the safety of their care to general practices. Each GP practice will receive a summary of the findings for their practice.

 

Payment

Each practice will receive £500 for taking part in the study. They will need to provide their financial details so that a contract can be drawn up and they are added to the University of Manchester financial system as a ‘supplier’. Once they have signed the contract, we then raise a requisition for a purchase order that relates to the services the practice has agreed to supply.

 

Contact

For further information about the study and to sign up to take part, please contact:

Dr Sally Giles, Research Fellow, NIHR Greater Manchester Primary Care Patient Safety Translational Research Centre, University of Manchester, Tel: 0161 306 8020, Email: sally.giles@manchester.ac.uk