Archive | October, 2015

Hearing without Listening: Part Three

30 Oct

by Max Scott, Patient

  • Part five of the blog series “The desperate fight to be heard, and supported, when living with the invisible struggles of multimorbidity”
  • Introduction to the series here

Max_Scott_Medic_Alert_Card_2015_BLOG5

As I remarked in my previous blog (Hearing Without Listening, Part Two) the effects of careless communication from Doctor to patient can be devastating to a patient’s morale and confidence. This is a point which I wish to make very strongly. Having already been shocked by my GP’s comments regarding my request to have tests, I was later to have another jolt.

It is hardly surprising, that trying to cope with adapting a lifestyle around so many differing conditions (see copy of my MedicAlert card above), eventually led to severe clinical depression. After having to endure yet more psychologically harmful opposition (“what good do you think talking about it will do on top of the tablets I’ve given you?” said a certain GP who should have known better), I was referred to a couple of Primary Care Mental Health Specialists (“the girls”, as I call them to my family) who I’ve been seeing fortnightly for the past couple of years, and have been invaluable in their support, even if it is just sometimes for me to offload. However, during one appointment, relatively early on in my sessions with them, came this question: “Does the thought of being well worry you?”. Well… no words can describe my state of incredulity upon hearing this. I was so upset by this question that I went away and wrote a letter to them before my next appointment, expressing my feelings. During our next meeting, it was explained to me that such questions are standard practice. But here is the problem for those with Multimorbidity: standard practice that question might be – if dealing purely with a mental health issue. But to somebody whose life has been changed forever by a multitude of conditions that often combine to make life hell, and impact massively on its quality, such a question becomes an affront. The person who said it to me has been part of a two-person team who have supported me as best as they can, and who would never have meant to upset or offend – but, by putting a question to me that was only linked to one of my health conditions, leaving aside the others, the damage was done.

Art – is there any science to it?

16 Oct

TheNest

The Nest, a one-off theatre production commissioned by NIHR Greater Manchester PSTRC and written and produced by Strawberry Blonde Curls Theatre Company, examines the opinion-dividing topic of sharing health records. The interactive show is taking place at Z-ARTS on Thursday 29 October at 19.15 and free tickets can be booked online.

As a preview to the play, John Tomlinson, Producer of Strawberry Blonde Curls, gives his perspective on mixing science and the arts in this latest venture.

“If someone were to ask me why I love the arts, I’d probably say it’s because they are inspiring, courageous and unpredictable – there’s no science to it. I mean, there’s no science to what makes good art, unless you make a piece of art about science. Lost? I’ll explain.

I’ve always been in love with making theatre and performance happen, it’s the most satisfying job I could have wished for. Lucky for me, that’s what I do for a living. Strawberry Blonde Curls Theatre Company has been part of my life since Rosie MacPherson and I set it up after graduating from The University of Salford in 2010. We wanted to make theatre our way, dramas through strong, intelligent, emotional characters that twist and turn to explore issues that people don’t talk about, or express. The arts do that; they give you a platform to make something truthful and real, something that can put your stamp on – a theme, a subject or a genre.

I’ve always been someone who talks about what I do, because the passion oozes out of me. So when I find myself at an event about Arts-Science collaboration earlier this year, I talk, and listen and talk some more. I talk to everyone, but I listen more than I talk. I always remember a colleague of mine once told me that if you need a plumber, you know you’re going to pass one that day, you just have to find who it is. Producing theatre is very much that; my role is to find brilliant creative people – actors, writers, directors, designers, composers – and fuse together the best mixture. Finding the right components and do an educated experiment, you could say. So when you’re at an event like that Arts-Science collaboration session, it’s perfect and this is why I’m writing this blog. I met some of the Greater Manchester PSTRC team who wanted to produce an engaging project with researchers, who want to make something different – to challenge themselves, as well as present results of their work. We’re on the same page and I tell them that we’re right for the job. I can get a masterful team together to get to grips with the brief, understand the content and you know what, it’ll be a challenge for us as well. Excellent. If this had been a simple task, I probably wouldn’t have been interested – we’re a company that wants to produce relevant, timely, new pieces of work and this is definitely one of those.

So, in a similar way to a scientist carefully examining the fine details of their elements to bring them all together (without something exploding), that’s what I’ve been doing. The script of this piece is crucial, the venue, the environment and everyone making it has to understand the core values of why we’re making this show. It’s a one off, it’s limited capacity and it’ll be over in a flash – but for the next month, it’ll be the most important thing we do.

As I said, there’s no science to it. The arts are so exciting and unpredictable that trying to understand the science of what happens when people are absorbed by, and engaged with, an exceptional piece of drama, is what everyone is trying to research. The artist, or scientist that discovers that, will be remembered for a long, long time.”